Friday, September 30, 2011
Wednesday, September 28, 2011
9/28 Appointment Recap
Today Cole had appointments at CHOP. We started the day off at 9am with an echocardiogram which he was sooo good for!! I was so proud of him. They were able to get the pictures they needed quickly and painlessly. YAY!!! Usually he cries and it is so stressful because then the ultrasound technician starts stressing out which in turn makes me stress out. We got some really good news today that one of his pulmonary arteries has started to grow the other pulmonary artery not so much (the other not growing isn't good news, I'm just thankful for some growth). We will wait until next week when his primary cardiologist comes back from her leave of absence for a final decision on whether or not they want him to get some stents in his pulmonary arteries to help them grow more. His pulmonary arteries need to grow so that they can do a full repair on his heart. His oxygen saturation levels were 85% and he weighed a whopping 13lbs 12oz and 24 inches long and is in the 30th percentile for weight. So all in all the cardiologist was happy with his progress. After seeing cardiology Cole had an appointment with GI. They thought that he looked great!! No yellow and a chunky baby!! Hence no liver disease! Yippie!! We were able to talk to them about his dairy allergy. They just said to be really really careful with what we give him his first year of life, strictly nurse him until he is 6 months old and then when we start solids we need to watch because some brands of rice cereal have diary in them. Also, they said not to give him soy because babies that have milk protein allergies often times also have soy protein allergies. I would have never thought that... Always learning something new! They did want Cole to have some labs done since the last time they got them was like 2 months ago. Poor guy really was upset. I felt so bad for him!! He is such a good boy!
Cole started as of yesterday grabbing his toys and blowing raspberries. It is so sweet! He loves to sit up and look around. Big boy I can't believe he will be 4 months old already on Friday. It goes wayyyy too quickly!
We have a busy October. There is something going on every weekend. Two weddings, Owens 2nd birthday and other things.
Cole started as of yesterday grabbing his toys and blowing raspberries. It is so sweet! He loves to sit up and look around. Big boy I can't believe he will be 4 months old already on Friday. It goes wayyyy too quickly!
We have a busy October. There is something going on every weekend. Two weddings, Owens 2nd birthday and other things.
Thursday, September 22, 2011
We've been having a lot of fun with Cole these past few weeks. He started to hold his head up by himself and he's starting to pull himself up when he's laying down. When he's giggling and rambling on; it sounds like he has a smoker's voice. He's a big fat fattie, too. 13+ pounds. I guess that's what happens when you sleep and eat all the time...
Ashley tried eating dairy again and that didn't work out so well... Cole was miserable and had blood in his stools. Which means it makes it a "real" allergy and not a "sensitivity."
We took him to the Ear, Nose, and Throat doctor last week to see if he could see anything obstructing his hearing. Besides the pediatrician he is the only one that has actually looked in Cole's ears. Everything looks normal and he wants us back in three months to do some hearing tests that hopefully Cole will be able to interact with.
Next week we have a GI and cardiologist appointment down at CHOP. This should be our last appointment with our substitute cardiologist and we're hoping for growing PAs!
Below are pictures from our third attempt at getting family shots last week. Each time we went out Cole wasn't very happy. Mainly, because by the time I get home from work, showered, and dinner it's around 8-8:30 and he's usually settling down by then. Luckily, I got home pretty early one day and we got out the door before 7 and had enough day light to catch these before Cole got upset and the sun went down. Both happened simultaneously...
Ashley tried eating dairy again and that didn't work out so well... Cole was miserable and had blood in his stools. Which means it makes it a "real" allergy and not a "sensitivity."
We took him to the Ear, Nose, and Throat doctor last week to see if he could see anything obstructing his hearing. Besides the pediatrician he is the only one that has actually looked in Cole's ears. Everything looks normal and he wants us back in three months to do some hearing tests that hopefully Cole will be able to interact with.
Next week we have a GI and cardiologist appointment down at CHOP. This should be our last appointment with our substitute cardiologist and we're hoping for growing PAs!
Below are pictures from our third attempt at getting family shots last week. Each time we went out Cole wasn't very happy. Mainly, because by the time I get home from work, showered, and dinner it's around 8-8:30 and he's usually settling down by then. Luckily, I got home pretty early one day and we got out the door before 7 and had enough day light to catch these before Cole got upset and the sun went down. Both happened simultaneously...
Thursday, September 8, 2011
Monday, September 5, 2011
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