Sunday, July 25, 2010

I know we haven't really been writing much lately. That's because our computer crashed while I was trying to rip the funeral dvd onto the computer last month and we just got it back yesterday. It's running better than new now.
We went to the reproductive specialist a few weeks ago just to sit down and talk and make sure we are all on the same page. They told us that they would do anything we wanted them to do but, his recomendation was just to be closely monitored and to try to get pregnant without any intervention. Your chances of getting pregnant at our point in life is only 9%. Any shot they would give would only bump it up to about 15%. Which would do wonders if your 35 and your chances are only 3%. But they will be monitoring Ashley very closely when she is pregnant, ultra-sounds every week and Owen's cardiologist wants to see her at 13 or 14 weeks. She said it'd be great to see you again and have good news for you this time! Isn't that the truth! Both her and Dr. Loomes are still in contact with us and are just great. I don't know if or how they could treat all their patients like they treated Owen and us.

They have been conferencing over Owen's case at CHOP and our not sweeping it under the rug. Dr. Loomes brought up alot of our problems with how he was treated his last stay and how they can change things and do them differently. Like not letting him eat all day and moving him around from floor to floor.
We got his autopsy in the mail last week... According to that, Owen is the only case that is consistent with both AGS and BA. Which is hard to wrap your brain around! We know Owen is special but, that is a totally different meaning!

Hopefully now that we have the computer back, I can start back up again on the book and working on a few other ideas that have been floating around my head.

Update on the roof leak:
I went up and patched it temporalily. A builder I know is going to come and do it in the next couple of weeks...and I'm pretty sure he is doing it for charity. The price he gave us was half of what everyone else quoted and I know he is not a cheap contractor! Thank God!

Our friends at Allebach Photography {who we can't thank enough for all they did leading up to, and the day of the funeral} took photos the day of the funeral for us and they turned out great. I think we were the first wedding they did and the first funeral.

Alot of people ask me how I was able to keep it together carrying the casket out of the church and to the burial.
It really wasn't hard at all. It almost something I felt like I had to do. Almost a sense of duty.

Wednesday, July 21, 2010

9 months...

Love you Buddy

Thursday, July 15, 2010


Owen's stone is in the ground!! I'm not sure why that is exciting to us but, it is!

Saturday, July 10, 2010

Roof leak

We had a pretty nice surprise when we woke up this morning. There was water coming in through the bathroom door jam. We put a bucket down and thought at least its not the dry wall. Then the smoke detector went off which I knew meant there was water coming into the box. Pulled that down and put another bucket on the floor. Then we saw it coming down in the corner (see pic) to which I made the hole bigger to help drain the water faster but by then it was too late and water got down into the dining room bubbling out two seams about six feet both ways. Back up stairs another spackle seam bubbled out and leaked on the crib. Not fun! Not easy to fix either. Especially because it bubbled out on the wall. We'll have to repaint the whole wall so it matches and both ceilings. Needless to say we are getting this roof fixed this week.

Monday, July 5, 2010

Plaster cast

We got owen's plaster cast last week. It's not what we expected in a good way. It's really cool. We should of had them do his face. Our pc crashed last week so, as soon as we get that back we will have more to say on the trip down to pick it up and what else we are thinking about. Happy independence day.