Wednesday, August 24, 2011

8/24 Cardiology Appointment

Today Cole had a cardiology appointment and an echo.  Cole really wasn't a fan of the echo he cried so I had to sit up on the table and nurse him while she did the echo.  The echo revealed that his branch pulmonary arteries infact did not grow at all since his surgery.  It looks like it will take awhile for his pulmonary arteries to grow.  I guess in some they get the shunt and the pas grow right away and in others it takes some time.  For Cole it seems like it is going to take some time.  Dr. Szwast was thrilled with how Cole looked though.  We are getting a pulse oxometer for at home to check his oxygen stauration levels daily.  His oxygen saturation levels were great though today at 87%.  I guess she just doesn't want me to worry if he has any tet spells (blue spells).  He is weighing 11lbs 15oz!!  I guess it is a good thing that I washed Owen's 3-6 month clothes that Cole can wear.  A majority of them are winter and it is still a little too warm out for winter clothing.  That is okay though I like to buy Cole new clothes!  I also moved him up to size 2 diapers.  He was just having way too many blow outs.  haha..  I have slowly been incorporating some ice cream back into my diet.  He seems to be tolerating it well!  Yippie!!!! 

After each caridology appointment I sigh a big sigh of relief!!  Although, September he has a doctors appointment every week...  In a way I wish they were all in the same week so I could have a couple weeks off.  Oh well...  Hopefully GI will release him if everything continues to look the way it has.  Then, he will only need to see cardiology.  He also sees ENT in the middle of September. 

Thursday, August 18, 2011

A Sick Momma & An off Baby

Since last Friday August 12th Cole had seemed a bit off to me.  Just a bit more irritable, he was starting to sweat with feeds and he was a bit more blue.  So, I decided to take him to the pediatrician on Tuesday.  The doctor said he looked great and couldn't find anything wrong with him.  Although, she did up his dose of Zantac from .5mls twice a day to 1.5mls twice a day and I feel like I have seen a difference already.  She wants us to get a handicap placard for the days that it is really hot and really cold out.  She doesn't think it is good for him to be in extreme temps.  She also said they need to start the process to get him his synagis shots.  Since Cole is so young he is unable to get the flu shot and if he would get the flu or RSV that would be really bad...  So he needs to get a synagis shot monthly during RSV season I believe it is for 5 months.  Although, the synagis shots are VERY expensive so they need to get it approved by insurance and that often times can be a long process.  Coles oxygen saturation levels were between 87-91% at the pediatricans office.  YAY!! That means the surgery he had 3 weeks ago today was a success.  I am hoping we get good news when we go back to the caridologist next Wednesday that his Pulmonary Arteries have grown like they should.  With that said ever since he was home from the doctor on Tuesday he has been an angel.  He is so good!!!  I am very thankful for that.  He has been sleeping great for me at nights he will go to bed around 9-10pm and then get up at 4am and nurses and goes right back to sleep.  Although, after that stretch he gets up about every 2 hours until we get up for the day around 8am. 

As of Tuesday I came down with a high fever and I was feeling very achey and super tired.  It turns out that I have mastitis from nursing.  I am so glad it's not contagious..  The doctor put me on antibiotics and I am feeling MUCH better today!!!  My fever finally broke early this morning and I no longer feel like a furnace. haha! 

I have been super busy getting things done for my sisters baby shower that is 9 days away.  Along, with all the day to day household chores and taking care of my sweet boy!! 

I'll leave you with a picture of our sweet little guy that just smiles away at his daddy and mommy!!

Have I every mentioned how much he loves his bath?!  And if you can see it his scars are looking great!!!

Tuesday, August 9, 2011


It seems Cole has turned the corner.  He is feeling so much better he has been sooo good the past two days.  For the past two nights he has been wanting to sleep all night and not get up to eat.  I wish I could just not freak out and think that something is wrong with him when he doesn't wake up.  I have been letting him go 5 hour stretches between feeds in the middle of the night, so I guess I will let him go 6 hours.  Cole started smiling in response last Thursday and has been very interactive and happy and and cooing when he's awake.  He still cries sometimes when he gets the hiccups, but there is certainly some improvement.  He also is loving his swing.  Yay!!!  I am actually able to put him down and get some things done around here.  I took Cole for his 2 month pictures yesterday.  Better late then never.  I think they turned out really cute even though Cole wasn't a fan.  He didn't want me to put him down he screamed.

Saturday, August 6, 2011

Go phillies!

Tuesday, August 2, 2011

2 Month Well Check

Today Cole had his 2 month well check and all looked great!!  He cried just about the whole time...  Poor thing!  On a positive note his lazy eye corrected itself.  YAY!  The doctor said that he looks like he possibly has fluid in his right ear and wants him to see the ENT doctor.  He is thinking this may be the cause of his mild hearing loss in his right ear.  He has a flat head in the back, but that too will correct itself with time.  He also has a mild case of cradles cap and weighed in at a whopping 10lbs 11oz and 21 1/2 inches long.  He is in the 5th-15th percentile.  I can't believe how much he is growing.  So much for all of those 0-3 month clothes that I bought for him....  Since his heart surgery he has been wearing button up outfits and he doesn't  have too many of those so he has been wearing the same 2 outfits off and on and button up onesies.  He'll be in the next size clothes until he isn't so miserable that I can't dress him in anything that goes over his head.  Cole has been soooo miserable every night.  Ian and I pass him back and forth a thousand times trying to comfort him and Cole just screams his head off.  Poor thing.  This ususally goes on for about a half hour or so although tonight was much longer.  I have no clue what the problem is.  I think it's gas, but I can't be 100% positive.  I'm sure tonight it's gas, his chest, the fact that he just got shots.  Poor thing I feel like he never gets a break. 

This evening since it was so beautiful Ian and I decided to take Cole for his first walk in his new stroller!!  He loved it.  He only cried once for about 5 minutes because he got the hiccups, but then he fell asleep. 

He was more interested in looking at his daddy then the camera.