There isn't much to report today. Audiology came by to repeat Coles newborn hearting test since he failed the first one, but of course he wasn't sleeping so they couldn't do it. Hopefully, the next time they stop by he will be sound asleep so they can do it.
Cole got weighed again today and weighed in at 10lb 1oz and he also had his length checked and he is just about 22 inches long. I can't believe how big he is getting so quick. Owen didn't weigh 10lbs until he was 6 months. I am not used to having a big baby. I am so thankful Cole keeps growing and growing and his liver looks great.
We spoke to the attending cardiologist today and he said that Cole will be having a partial repair instead of a full repair. They will be placing a shunt in his pulmonary arteries to help them grow a bit and then in a few months after his pulmonary arteries have grown they will do another open heart surgery and do his full repair. Dr.Goldberg also said that they might go through his back (a thoracotomy incision) instead of going through his chest (a midsternum incision.) Dr.Goldberg also said to plan on being here through the weekend. As I said before we are praying everything goes very smoothly and little guy will be home soon after his surgery.
Dr. Ravishankar (another attending cardiologist) came in today to let us know Coles primary cardiologist Dr. Natarajan who had major surgery last week is doing well. I'm sure if you have been following our blog you read that she will be out for 3 weeks. Dr. Ravishankar also said that she spoke with Dr. Loomes (Coles liver doctor) and she is absolutely thrilled with the fact that Coles liver labs came back normal!! Yay!!! I love every time a doctor comes in here and is all excited because Cole's liver is unaffected by the ALGS! I am so thankful to God for a healthy liver for Cole!
Today we got a few visitors which was nice!! It breaks the day up a bit. We spend all of our time loving on our little guy. He's such a sweet heart. Every new nurse that comes in says how cute he is. Most of them also say he looks just like me (Ashley).
I have been so tired, Cole has been nursing every 2 hours instead of his normal every 3 hour schedule. He must be going through a growth spurt. Porking up for his surgery. At home he usually goes atleast one 4-5 hour stretch at night, the past two nights he has been up after 3 hours sometime sooner to eat. So, I have been averaging about 4-5 hours of sleep a night. Morning comes too soon here you pretty much have to be up at 6am. That's when the doctors start coming in to check Cole and wake him up. haha! Thankful it has been fairly quiet around here during the day so I am able to squeeze in a short nap. Ian has been staying at the Ronald McDonald House. We both sleep great with the sleep we get. Ian usually leaves here around 10-11pm and comes back in the morning around 9. He walks back and forth it is about a 10-15 minute walk.
Our family has been great about stopping by our house daily and getting our mail and bringing us anything we need.
On a super sad note, another family lost their precious son to ALGS last night. He was 16 years old. My heart sunk when I read the news this morning. Please, keep the Caldwell family in your prayers.