Monday, May 10, 2010

alagilles syndrome with tetralogy of fallot

Our surgeon just came in and talked to us. He said he took us off the schedule for tomorrow. Apparently Owen's liver is failing pretty rapidly. More rapidly then they have been telling us. He is not sure if the heart should be addressed first or not. He also said something about going on the liver transplant list. This is all a huge shock and we are thinking about getting a second opinion we just don't know where or how much time we have. Not too mention what insurance will cover.  I guess the surgeon is going to talk around and review owens file more and see what his labs are like today before any decisions are made.


  1. Praying for you, all - right now...

    It was so good to see you at church yesterday.
    Hang in and prayers.

  2. Just got the church e-mail about Owen's upcoming surgery tomorrow, so I checked out your blog to find the new news. I'm praying for wise decisions from the doctors, clarity of mind for you two and peace about Owen's next steps. Sending out a hug from Rachel & me!
    -Jill Bennett

  3. I just prayed for all of you and we'll all keep you in our prayers.