alagilles syndrome with tetralogy of fallot

Our surgeon just came in and talked to us. He said he took us off the schedule for tomorrow. Apparently Owen's liver is failing pretty rapidly. More rapidly then they have been telling us. He is not sure if the heart should be addressed first or not. He also said something about going on the liver transplant list. This is all a huge shock and we are thinking about getting a second opinion we just don't know where or how much time we have. Not too mention what insurance will cover.  I guess the surgeon is going to talk around and review owens file more and see what his labs are like today before any decisions are made.