We just talked with GI and they said it looks like he doesn't have biliary artresia but, they may need to do another biopsy in a few weeks to make sure it hasn't turned into that. It can develop over time apparently.
He does have bile congestion in his liver. They want to check for Cystic Fibrosis by doing a sweat test and more bloodwork. GI just came back in the room and said she was going over his records and saw the optometrist report and said we could be leaning more towards the Alagilles Syndrome from his findings. She saw some lines or something in the back of Owens' eye that is common in AS. So far it looks like everything will be treated with vitamins and minerals and close monitoring.
No comments:
Post a Comment